The FPIES Foundation pages

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Showing posts with label Living with a Rare Disease. Show all posts
Showing posts with label Living with a Rare Disease. Show all posts
Thursday, February 2, 2017

10 Things You Can Do to Spark the Conversation About Rare Diseases

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The FPIES Foundation has joined forces with 30 million Americans and health care advocates around the world for Rare Disease Day® on Febru...
Friday, June 3, 2016

Helping Families Navigate the Emergency Room with a Rare Disease

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FPIES Foundation Joins in #RareErChat on Twitter The FPIES Foundation joined as the National Organization forRare Diseases (NORD...
Sunday, February 14, 2016

Create a Conversation about FPIES for Rare Disease Day 2016!

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On Feb. 29, 2016, Rare Diseases Day gives us the opportunity to raise our voices for FPIES in solidarity with all rare diagnoses.  The th...
Wednesday, March 18, 2015

A Rare Disease Day Challenge for FPIES

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This year, in honor of Rare Disease Day, a family in the FPIES community hosted an awareness event for FPIES.  We, at the Foundation, found...
Monday, February 23, 2015

FPIES Foundation joining forces with Rare Diseases Community and Global Genes

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FPIES Foundation joining forces with Rare Diseases Community and Global Genes 350-million voices to make a difference ' You are n...
Monday, February 9, 2015

Rare Diseases Day 2015: Living with a Rare Diagnosis

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Every year, we participate with the Rare community to celebrate Rare Disease Day ! This annual global event on the last day of February a...