NON PROFIT TO SUPPORT PEDIATRIC
PATIENTS WITH RARE DISEASE, RE-LAUNCHING WEBSITE FOR ANNIVERSARY, CINCINNATI,
OH, AUGUST 27, 2012: The FPIES Foundation, headquartered in Cincinnati,
OH, is announcing the launch of their new interactive web site on Monday,
August 27, 2012, to celebrate the organization's one-year anniversary. The
organization’s executive board identified a dire need for additional support
resources and has significantly increased the amount of patient education tools
on the new site to improve educational and practical resources for families and
medical professionals alike.
Food Protein Induced
Enterocolitis Syndrome is a rare, non-IgE mediated food allergy of the gut
afflicting infants and children. A delayed reaction occurs (~2hrs or more)
after ingesting the culprit food. Classic symptoms include profound vomiting,
diarrhea, and dehydration. Symptoms can quickly lead to lethargy and in severe
cases, septic-like shock. Little is known about this rare disease and currently
no known causes, cures, standardized tests or treatment plans exist for FPIES
patients. The FPIES Foundation was formed in August 2011 to provide
support for families and medical professionals navigating this rare disease.
The FPIES Foundation's new web site will offer an expanded toolbox, a physician
locator, an expansive glossary, and many more multimedia resources.
The FPIES Foundation is
comprised of an executive board and a medical advisory board, with board
members located in communities nationwide. The Foundation’s goal is to
collaborate with families, medical professionals, and partnering organizations
across the globe to improve the lives of FPIES children, present and future.
“We provide a network of caring-- the support you need to support your child” –
Joy Meyer, founding member and Chair.
This post was written by the Executive Board of The FPIES Foundation
This post was written by the Executive Board of The FPIES Foundation
