"Alone we can do so little; together we can do so much." ~ Helen Keller

At The FPIES Foundation, we believe that forming strong bonds with our local and global communities means greater strength for supporting our children and families. We believe that it is only by partnering with our community that we can effect change. Together, we can make a difference in the lives of FPIES children and their families.

But how can you make a difference? How can you help us to build this foundation of resources and support?

The FPIES Foundation recognizes donations of time and talents!  The talents of one mother whose daughter has FPIES enabled us to release a video on YouTube for Food Allergy Awareness week 2012-- thank you, KatieLou Photography!  Beautiful photographs designed specifically for our new website by Photographyby Sarah M, capturing the essence of the lives of those living with FPIES, were also contributed by a mother whose daughter has FPIES.

The FPIES Foundation blog and website aim to continue to put a voice to this rare allergy. By writing and sharing your story for the Inspiring Family Stories page on the website, you can help contribute to that voice. Putting a story behind your experiences helps others to not feel so alone and can inspire others to reach out as well!

If you are a crafter, our Hugs for Heroes program continues to accept donations of your talents. Your creations can give comfort to a child with FPIES!

Let's continue to build this foundation of caring together! The FPIES Foundation is an entirely volunteer-based organization and does not keep any paid employees– all manpower is unpaid. Any efforts to support the activities of The FPIES Foundation are enormously appreciated, as we strongly value anyone reaching out to FPIES families. 

The journey with this diagnosis can be daunting but the connection to one another can certainly help the load that we all carry to feel a bit lighter. When you are ready and able to reach out, we have opportunities available to suit various interests and availability. Contact us at contact@thefpiesfoundation.com for more information-- we can't wait to hear from you!

This post was written by the Executive Board of The FPIES Foundation 

The FPIES Foundation Celebrates 1yr. Anniversary!

NON PROFIT TO SUPPORT PEDIATRIC PATIENTS WITH RARE DISEASE, RE-LAUNCHING WEBSITE FOR ANNIVERSARY, CINCINNATI, OH, AUGUST 27, 2012: The FPIES Foundation, headquartered in Cincinnati, OH, is announcing the launch of their new interactive web site on Monday, August 27, 2012, to celebrate the organization's one-year anniversary. The organization’s executive board identified a dire need for additional support resources and has significantly increased the amount of patient education tools on the new site to improve educational and practical resources for families and medical professionals alike. 

Food Protein Induced Enterocolitis Syndrome is a rare, non-IgE mediated food allergy of the gut afflicting infants and children. A delayed reaction occurs (~2hrs or more) after ingesting the culprit food. Classic symptoms include profound vomiting, diarrhea, and dehydration. Symptoms can quickly lead to lethargy and in severe cases, septic-like shock. Little is known about this rare disease and currently no known causes, cures, standardized tests or treatment plans exist for FPIES patients. The FPIES Foundation was formed in August 2011 to provide support for families and medical professionals navigating this rare disease. The FPIES Foundation's new web site will offer an expanded toolbox, a physician locator, an expansive glossary, and many more multimedia resources.

The FPIES Foundation is comprised of an executive board and a medical advisory board, with board members located in communities nationwide. The Foundation’s goal is to collaborate with families, medical professionals, and partnering organizations across the globe to improve the lives of FPIES children, present and future. “We provide a network of caring-- the support you need to support your child” – Joy Meyer, founding member and Chair.

This post was written by the Executive Board of The FPIES Foundation 

Celebrating Food Allergy Awareness Week 2012

The FPIES Foundation presents an awareness slideshow for FPIES (Food Protein Induced Enterocolitis Syndrome) for Food Allergy Awareness Week (FAAW) 2012. The video stars some adorable children who just happen to have FPIES. For more information on FPIES visit: www.thefpiesfoundation.org 

Video created by: Katie Lou http://katielousphotography.com/blog/ 

Music by: Kevin McLeod. Eternal Hope http://incompetech.com/m/c/royalty-free/index.html?keywords=eternal+hope

This post was written by the Executive Board of The FPIES Foundation