The FPIES Foundation
invites everyone to participate in the first official celebration year of
Global FPIES Day on October 14th!
FPIES
(Food Protein-Induced Enterocolitis Syndrome) is a rare type of food allergy
and the need for awareness, education and support around the globe is great. Newest MAB member, from Spain, Sergio Negre Policarpo, MD, PhD shares, “Our aim is to improve the diagnosis and
treatment of this disease by avoiding wasted time and misdiagnosis. Similarly,
our desire is to bring knowledge of this entity to the general population and
expand their knowledge in Spanish-speaking territories.
Just as Dr. Powell empowered medical providers with tools
for the FPIES diagnostic criteria, The FPIES Foundation will continue providing
tools for providers, patients and families. Over the years, we pursued the
campaigns such as "Awareness is Action," "FPIES: Now I
Know" and "FPIES: Be the Voice"-- our aim for Global FPIES Day
remains consistent with these ongoing initiatives: to educate, support and empower
through global outreach, multi-faceted resources, and innovative research.
We are proud to launch the webpage (www.fpiesday.com) dedicated to everything you need to know for Global
FPIES Day. This webpage is your one stop for learning and sharing information
about FPIES, ways of establishing awareness in your community, being an
advocate, connecting to research and so much more!
The highlights of the
webpage are the simple ways you can be part of the day: wearing your awareness,
sharing your awareness with a ribbon frame, building awareness with Foundation
flyers, printing awareness packets for providers, patients, and families,
participating in "fourteen for FPIES", and joining the fun with
Sarah's FPIES Clubhouse.
In honor of Global FPIES
Day, we aim to raise greater awareness to this often misunderstood diagnosis.
Please visit www.fpiesday.com for ways to get involved or contact The FPIES
Foundation at contact@thefpiesfoundation.org for more ways that you can help!
This post was written by the Executive Board of The FPIES Foundation
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