This post originally
appeared on Hots & Olives, Joyful Living with Allergies and is being shared
here today by author Margaret Hancock, food allergy and mom to a child with FPIES.
I remember it vividly. I walked into the taqueria for chips
and salsa and left with the stunning realization that I didn’t know how to
explain allergies to my child.
It was kids night at the local Mexican restaurant and as
part of the festivities, a balloon entertainer went from table to table
twisting into reality Weiner dogs and giraffes. My toddler daughter’s face lit
up when she saw them while my own face winced. For those latex balloon
configurations were an exciting novelty to her and an allergy trigger to
me.
I told her we couldn’t get one and she began crying. I
consoled her and said another time. I told her I was so sorry and apologized
for not being able to accommodate her very normal request. I agreed that it was
sad. I looked to my husband to jump in. I wept into my margarita.
In short, I did everything wrong.
The next day happened to be her annual check up and with the
previous evening’s incident fresh on my mind, I asked the pediatrician about
explaining allergies to a three year old. He told me she is smart and to tell
her the truth. Every time we encountered an allergen, simply say “that makes
mommy sick.” Repetition is key. Say it over and over again. “That makes mommy
sick.” Saying different things, using different words, or stumbling over
different explanations and looking to someone else for an answer is confusing
at best, and terrifying at worst, to a young child. The concept that something
making someone sick clarifies.
He also said to never apologize or emotionalize it. For its
not something to be sorry for or emotional about – it’s a medical condition the
same way any other condition is. She will only be sad if I make it sad. She
will only cry and emote if I give her permission to cry and emote.
I thought this all made darn good sense, but I needed to see
it in action. So the next time we were faced with a balloon opportunity, I
knelt down, looked my daughter in the eyes and said “those balloons are
beautiful but we can’t go near them. They make mommy sick.” She nodded her
head, shrugged her shoulders, and said “oh, okay.”
Amazing! My child IS smart and DOES deserve the truth!
Having the knowledge to say these simple few words in a
matter of fact, unemotional manner empowered me. I felt like I had the
necessary tool in my tool belt and no longer felt panicked that I would encounter
an allergen with my daughter in tow.
This also translated well when several years later, we
explained to her that her baby brother had allergies, too. “That makes W sick”
not only makes sense to her, but she can easily explain it to others. I overhear
her use the same line to her friends when they question why W’s breakfast plate
is piled high with hots instead of buttered pancakes. She says it
matter-of-factly, unemotionally, and confidently.
The simple truth at play!
This post was written by Margaret Hancock. Margaret is a writer, a mother to three including a
toddler with FPIES, and an allergy navigator herself since the age of twelve.
Margaret recently launched Hots&Olives, a blog dedicated to living joyfully
with allergies that can be enjoyed at hotsandolives.blog
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