We know that raising awareness happens every day for a family living with
FPIES. During these days of Food Allergy
Action Month, we want to help you be prepared with a few quick and simple ways
to share your awareness. We introduce “31
ways in 31 days” :
- Awareness IS Action! Start
a Conversation today.
- Download and distribute “About FPIES” in your community – online and in person!
- Share our “Have You Heard postcard”
- Visit
our FPIES
Awareness page to
print community awareness cards, rack cards, flyers and more to
distribute to teachers, doctors, schools, and providers.
- Organize an FPIES Recipe Challenge
- Change your social media banner or profile picture to “FPIES in a Word” and invite your family and friends to learn what it is like
living with FPIES, #AskMeAboutFPIES
- Share our YouTube
videos
- Receive a
packet of preprinted awareness materials to distribute in your community. Write
to: contact@thefpiesfoundation.org
- Share your
favorite recipes that you use to cook for your child with FPIES on the Foundation forum.
- Color an “FPIES is Rough, But I am Strong” mini book with your child
- Have a packet
of awareness and educational materials sent to a provider or hospital, simply send us the name/address of where you would like
it sent- we’ll do the rest! contact@thefpiesfoundation.org
- Add the
Foundation Support button to
your blog or profile pictures.
- Submit YOUR
inspiring story to us at: contact@thefpiesfoundation.org
- Share the FPIES Q&A page
in your online social networks
- Learn new ways
of becoming an
advocate
- Contact the
local news media and share your
story
- Share our Label
Reading tutorial with new
parents in your support groups
- Learn and share
new cooking tips in our Cooking
and Nutrition pages
- Link to a new resource
- Read and share
“How to Help an Family Today”
- Listen to the
Recording: "Advocating
for your Child in the Healthcare System” A joint webinar from ThriveRx and
The FPIESFoundation
- Print and share
the “FPIES-at-a-glance Awareness rack card”
- Wear your
favorite FPIES awareness gear to spread awareness FPIES.
- Design an FPIES
awareness poster with your kids to share with their pediatrician's office,
take picture, and share it with us! Kids
in Action
- Talk to a parents' group about
your family's experience with FPIES.
- Coordinate
an Awareness
Event!
- Host
a Fundraiser
Event!
- Connect to
research on the Global
FPIES Patient Registry
- Learn
updates to the research through Medical
Journal Articles
- Support
our mission of providing education, support and advocacy to families and
medical providers and donate today.
- Follow our Website, Facebook, Blog, and Twitter for ongoing updates throughout the month!
This post was written by the Executive Board of The FPIES Foundation
