Be the VOICE of Education for those living with Food Protein-Induced Enterocolitis Syndrome on Global FPIES Day!

According to the FPIES Global Patient Registry, caregivers/patients report an average of 1-5 months, with several families taking up to a year, for a child to receive an FPIES diagnosis.  A year to diagnosis. A year of experiencing symptoms and reactions. A year looking for answers and support. The FPIES Foundation is working to change that.  We give more children, affected individuals, and their families help and support when we educate people everyday about the diagnosis.

This is where you come in. 

As we celebrate Global FPIES Day on Wednesday October 14^th; we want you to talk to your family, friends, caregivers, healthcare providers, daycare's, schools, and more about FPIES. Teach them the about the diagnosis. Don't know how to start the conversation? We can help! Don’t know what to share?  We can help!

And then, join us at www.fpiesday.com for our Global Day Virtual Online Interactive Community Event and find new resources and support for you and for you to share!

Also, don’t forget to register and complete the surveys on the FPIES Global Patient Registry! This is your chance to make an impact on the FPIES diagnosis. What better time to start than on Global FPIES Day? 

If you love our work then tell the world! It’s easy and only takes 3 minutes! Go here to get started! http://greatnonprofits.org/reviews/write/the-fpies-foundation

This post was written by the Executive Board of The FPIES Foundation 

FPIES Awareness cards!

With the help of this caring community of families living with Food Protein Induced Enterocolitis Syndrome, we have developed a set of new awareness cards for families living with FPIES, inspired by families.

The business card-sized awareness cards are great for providing simple explanations of FPIES for friends, family, babysitters and so forth. Keep them in your wallet, car, or taped to the fridge to promote awareness and understanding where needed!

This postcard-size FPIES awareness card is great for keeping in the diaper bag or a purse. It not only provides information in plain language about FPIES and how to identify a reaction, but also gives tips on ways others can help to keep children affected by FPIES safe. This is great to share at playgroups, with family or with caregivers!

Along with these newly developed cards, we continue to have the FPIES Awareness rack card, a great at-a-glance explanation about FPIES.   These and more printer-friendly awareness materials are available for downloading and printing (or save the photo and share it in your social media- Facebook, Twitter, Pinterest and more!) from our Raise Awareness page of the website.

We welcome requests or materials via e-mail or postal mail.  Simply contact us at: contact@thefpiesfoundation.org and we will be happy to send you an awareness packet! 

This post was written by the Executive Board of The FPIES Foundation