And then FPIES.
My oldest had a long list of fails as a toddler, but wheat
was one of our safes, and there were a very, very few types of packaged breads
he could eat. But between on-and-off availability and shifting ingredient
lists, I would spend what felt like hours in the bread aisle muttering
ingredients aloud to myself, trying desperately to find a loaf that was dairy-,
egg-, soy-, and corn-free.
The most frustrating thing about this experience (apart from
doing it several months pregnant and with a toddler), was that it shouldn’t
have been that hard. Bread doesn’t need all those extra things in it. When my
local grocery stores stopped reliably carrying anything we could eat, I started
researching bread machines. My mom, always finding ways to help in our FPIES
journey even while living in another country, offered to buy us one. Thanks to
the wonders of the internet and free two-day shipping, it arrived that week,
and I immediately put it to the test.
It sounds silly to say that a bread machine changed my life.
But I use it 2-3 times a week, and have for over three years
now. I make all our own bread. No more wasting ten minutes in the bread aisle.
No more dealing with the ever-mounting frustration as you realize that this
loaf has whey, and that one has corn flour, and this one has soy in one of its
myriad forms. Instead, five minutes of measuring, one push of a button and in less
than four hours, there’s a fresh loaf of bread ready to eat. I’ve also used it
to make pizza, soft pretzels, cinnamon rolls, hamburger and hot dog buns,
dinner rolls, and naan. It’s gotten me through two FPIES kids, my youngest with
only a dozen safe foods at the moment, and my own diet, which is dairy-, egg-,
and corn-free.
Could I have made all of those things without my bread
machine? Maybe. Theoretically. But the stress, hassle, time, and mental energy
it has saved me has been huge. And, realistically, I don’t know that I would
have been brave enough to try. There’s just something so intimidating about
yeast.
Even with as much as I love my bread machine, it still took
me a while to embrace other kitchen gadgets, probably because my oldest started
to outgrow his FPIES, thus opening up so many more commercially made foods, and
I had hopes that my youngest would as well. But as my youngest is now approaching
three, and showing no signs of outgrowing FPIES any time soon, I’ve started to
cave. He deserves fun foods too, and if I don’t make it myself, he usually
can’t have it.
As FPIES parents, we need all the help we can get in the
kitchen. I’m not saying you should go on a spending spree and rack up credit
card debt stuffing your kitchen cupboards. But if there’s a gadget that could
make your life easier, and you can afford it, go for it! Maybe there’s
something like a waffle maker, that would let you try a new texture or
presentation for your kids, or a gadget that will do what you’re already doing
by hand, but in less time and with less effort. I know some families have found
a Vitamix to be a huge help in making their own milks, or have gotten a lot of
use out of a stand mixer.
It doesn’t even have to be something that would cost
hundreds of dollars to be a big help. For some reason, I have always been
completely incompetent when it comes to making cut out cookies, and I finally
just gave up altogether. Less than $10 for a set of plunger cookie cutters, and
a little experiment with a recipe, and now my kids get to enjoy their own
animal crackers. You can find that recipe here.
This new perspective has helped my focus change from what we
can’t eat or make, to thinking of ways that I can work around certain problems.
Instead of “Oh, he’ll never be able to enjoy that,” I think “What would it take
to make that? Is it worth it? Are there any alternatives? What else could I
make that would be similar but still fun?”
FPIES is a battle, no
doubt about it, and a well-equipped kitchen can be a strong ally.
Now if you’ll excuse me, I think I have some more gadget
research to do…
What gadget would you splurge on that would make your life
as an FPIES parent easier in the kitchen?
This guest blog post written by Janie Dullard. Janie
lives in Pearland, Texas with her husband and two children, both diagnosed with
FPIES as infants, though her oldest has now outgrown it. She works as a
freelance editor and has written a children's book, available here: https://www.amazon.com/Elephants-Tour-Yellow-Umbrella-Company/dp/0990799522/ .
Her days are spent chasing after her two preschool-aged children, working, and
concocting strange FPIES-friendly foods that her children will sometimes even
eat.
